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Jackie’s Story

Jackie’s Story

“I was diagnosed with Fuchs Dystrophy in 2007, in 2010 I had corneal transplants in both eyes. In September 2020 I needed a cataract removed in my right eye which lead to another cornea transplant. I am so grateful for cornea donors. I wouldn’t be able to see without them.”  💚💙

Jackie, Cornea Recipient

Share Your Story with Saving Sight

Have you benefited from one of Saving Sight’s programs? If so, we would love to hear how it made an impact on your life. Each year, Saving Sight’s vision programs change thousands of lives, and our recipients’ stories are one of the most powerful tools we have to communicate our mission. When we can illustrate our mission well, we can help even more people.

If you’re interested in sharing your story for our communications, please fill out the form on this page to let us know a little bit more about your experience. Afterward, a Saving Sight representative will contact you with more information about how you can become an advocate for our sight-saving work.

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    In Memory, An Artist’s Gift

    In Memory, An Artist’s Gift

    Kansas City artist, Gabriella Mountain, was most well known for her larger-than-life abstract sculptures, mosaics, and stained-glass pieces. As an artist, she was diverse in her craft, creating commissioned works throughout the Kansas City area, including the old Main Library’s mosaic floor at 12th and McGee and the stained-glass windows at the Whiteman Air Force base chapel. Gabriella lived a remarkable and storied life, beginning in Hungary in 1918. After fleeing from war-torn Europe at the end of World War II, she came to America and started her life and career as an artist in the City area.

    Gabriella Mountain, via Dignity Memorial

    Dragons repousse door, via KCStudio

    While she was a well-established and awarded artist, Gabriella’s struggle with vision loss was lesser-known. After suffering from Fuchs’ Corneal Dystrophy for years, Gabriella received a sight-restoring corneal transplant surgery in March of 2013. While she was 95 years old, the transplant improved her vision, allowing her to continue creating beautiful works of art. In her later years, Gabriella transitioned from creating metal sculptures to abstract textile and fiber art.

    After a long and beautiful life, Gabriella passed away in May 2020 at the age of 102. In gratitude for the gift of sight, she left a gift to Saving Sight to continue our work restoring sight to others. We remember Gabriella in memoriam for her vision as an artist and her vision to serve others by supporting Saving Sight.

    If you are interested in making a gift to change lives by Saving Sight, please visit saving-sight.org/give or reach out to our communications team to discuss leaving your legacy with a planned gift.

    Jon’s Legacy

    Jon’s Legacy

     

    In memory of Jon Earwood, 1994-2020

    “Jon was a kind and genuine man. He always had a smile on his face. He loved being outdoors fishing or riding his motorcycle, singing and playing his guitar, and spending time with his family and friends. He loved his job as a welder helping the farming community. But most of all he loved being a dad to his son Thomas.” – Ashton

    Champion of Donation – Chaplain Dan Mefford

    Champion of Donation – Chaplain Dan Mefford

    Chaplain Dan Mefford

    Dan Mefford has served as a Chaplain for Mosaic Life Care Medical Center in St. Joseph, Missouri for 30 years. “Part of my role here, as all of ours are, is to respond to all end-of-life care crises,” says Chaplain Dan. “We are a part of what they’re going through and are there for the families as well.”

    At Mosaic Life Care, the chaplains also serve as the designated healthcare directive educators. When working with families about the healthcare directive, often questions about organ, eye and tissue donation and the individual’s wishes are brought up along with questions about what is available to them.

    As the lead chaplain for Mosaic Life Care’s ER and ICU, Chaplain Dan is involved with both Midwest Transplant Network and Saving Sight in the donation process. “Primarily, I work with Midwest Transplant Network and then they connect us to Saving Sight for eye donation,” says Chaplain Dan.

    “Our connection is really one of partnership. We have open lines of communications where we can talk to each other. We try to be the liaison to help Saving Sight and Midwest Transplant Network through the process.  We are a link between them and the family during this time. Sometimes Saving Sight might reach out to us to ask how the family is doing in their time of grief before they call the family to talk about donation. If the family asks me who Saving Sight is about a missed call, I can let them know to talk with them and that Saving Sight can help you with the donation journey.”

    He adds that he values his partnership with Saving Sight and Midwest Transplant Network for a couple of reasons: “One, we couldn’t do it without them. The donation process is way beyond what we are capable of by ourselves,” he says. “Their partners are trained to have these conversations as designated requestors. Two, I also value that we are partners. They look at us as partners in this journey and ask how do we make this happen so everyone comes out ahead. Never have I felt like a pipeline in the journey either. They see us as an integral part of what they are going through and that gives me a good feeling working together.”

    “Chaplain Dan is such an incredible advocate for donation,” says Darcey Ross, Hospital Development Manager at Saving Sight. “Not only for the individuals who have made the decision to donate, but he is such a source of comfort and support for the grieving family members as well.”

    Chaplain Dan stresses the importance of talks about organ, eye and tissue donation before the end-of-life-care journey as well. “I think it’s very, very important. Obviously, we can’t approach anybody about donation as chaplains because we aren’t’ designated requestors – that is Midwest Transplant Network and Saving Sight’s role. But a lot of times people will ask me what I know and think about donation. I think it’s even more important before end-of-life care. It’s essential to talk to the family and make your decisions known ahead of time.”

    He adds that being educated on donation and having your wishes known is vital in giving people the chance to live or see again when someone else dies.

    “I’ve had friends who have received organs or tissues and are living their life now because of it. I recall one family very early in my career here. Their loved one died, and they came to me and said he was a Lion and wanted to donate. They asked, ‘how do we make that happen?’ This impressed upon me during that conversation that donation isn’t a small thing; it means a lot,” says Chaplain Dan.

    “I’ve seen the lives that are changed through donation. And in the people who have donated their loved one’s tissues, their sense of helping someone else because their loved one is making a difference. It sends shivers down your spine to see how much it means to the family in their grief to donate – it’s a healing experience for those who are grieving.”

    “The donation process changes a life – with eye donation, up until that point the recipient could literally be seeing darkness. For the donor family it gives them a sense that their family member is continuing to help others through the processes of life,” says Chaplain Dan.

    For those families in the grief process after donation, Chaplain Dan offers comfort and support. “If the family is still here once a donation decision is made, we can reinforce that they’ve helped someone else. I see folks out in the community when it’s over and they’ll want to talk about that. It’s an affirmation for them of the gift they gave to someone else. It lets them know that there are people out there who truly are grateful for the gift they have received.”

    #GivingTuesday

    #GivingTuesday

    Give a Gift to Save Sight

    Join us on December 03, 2024 for #GivingTuesday.

    Make a Lasting Impact

    On Tuesday, December 3, Saving Sight will join nonprofits all over the world in a global movement of generosity for Giving Tuesday. We hope you’ll join us in making a gift to support our work in preserving and restoring the sight of others.

    Your financial contribution to Saving Sight allows us to continue the important work of educating about eye donation in the communities that we serve. With your support, we’re able to continue to fill our eye, organ and tissue donor registries so more transplant recipients receive the gift of sight. Together, we can engage communities and partners in saving sight for others.

    Are you ready to make your impact? Consider making a financial gift today of any amount to help us change lives by Saving Sight.

    Share An Unselfie!

    Show your support of our mission on #GivingTuesday by sharing an “unselfie” on social media. Download our template here and share a little with us about why you support our mission.

    Countdown to #GivingTuesday!

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    Staff Member Gains New Insight Into the Gift of Donation

    Staff Member Gains New Insight Into the Gift of Donation

    Donor hero, Robert, in his chef coat

    Robert was a professional chef and at his best self when he was in the kitchen.

    “My dad was the biggest dork,” Abby recalls. “He was always the one to make somebody laugh.”

    Robert was one-of-a-kind, with a dark sense of humor and a passion for culinary arts and cooking. He worked as a professional chef and was his best self in the kitchen. While Robert’s journey in life wasn’t easy, Abby remembers one-on-one time cooking with her dad in the kitchen and, most of all, feeling that “… I never didn’t know love.”

    On November 20, 2014, Robert died unexpectedly from cardiac arrest due to an overdose. Abby was only 19 at the time and had just started college a few months earlier. While much of the time shortly after his death was wrought with the pain of sudden loss, she distinctly remembers the conversation around his tissue donation. For years, Abby felt a powerful sense that her father had a message for her, and even had a vivid dream about him where he gave his heart to her.

    Fast-forward six years, and Abby had accepted a job role in Saving Sight’s Human Resources department. As she was exposed to the eye bank’s sight-saving mission and heard stories from transplant recipients and donor families, Abby’s curiosity about her father’s donation grew.

    “Being here, I wanted to know if my dad was able to impact somebody’s life,” says Abby. “It was definitely a full-circle moment.”

    This fall, Abby connected with the Aftercare team at SightLife, the local eye bank in Washington state that helped facilitate Robert’s gift of eye donation in 2014. She quickly learned that her father gave the gift of sight to two individuals in Japan. Abby finds special meaning in this, knowing that Robert used to get a lot of his culinary inspirations from Japan, as well as had love for the original Iron Chef show from the 90’s.

    Abby also learned from the local organ procurement organization, LifeCenter Northwest, that her father helped 57 people total through eye and tissue donation. Among those people is a 12-year-old girl who needs orthopedic surgery, a 78-year-old who required spinal surgery, and a young girl in Arizona who received a life-saving heart valve.

    That’s right. Remember Abby’s dream about her father’s heart? She finds special significance in this now, knowing that his donation was life-saving for a heart tissue recipient.

    Today is the 6th anniversary of Robert’s passing and Abby has found a new sense of connection to the gift of donation. Although no easy task for any donor family, she is working on writing a letter to his recipients to share more about who her father was and his legacy. She is also planning for a new tattoo that will pay homage to her father’s love of cooking and his lasting gift through eye and tissue donation.

    Restored Sight Takes Carol to New Heights

    Restored Sight Takes Carol to New Heights

    ​“One of my favorite things to do is swing on the 10-foot-tall swing in my backyard,” says Carol.  “I go on it every day and as I’m swinging, I can see everything going on and all the changes in the seasons. Every time I do it, I see something new in my yard and my neighborhood – it’s even better now after my surgeries. It’s my relaxation and my mediation.”

    After years of battling the progressive eye disease Fuchs Dystrophy, Carol’s sight was restored through corneal transplantation.

    Carol’s Experience with Corneal Transplantation

    “I inherited Fuchs Dystrophy from my father, who endured two unsuccessful corneal surgeries in the years before tissue transplants were available. Back when my dad had it, this new technology had not yet been developed. He endured a much more invasive surgery and it didn’t work. The whole thing was terrible for him and I was nervous to get it done. I dealt with that condition for many, many years and tried to treat it with eye drops for 15 years,” she says.

    Eventually, Carol realized she needed to have surgery and scheduled an appointment during the middle of the pandemic. She was scared because of her father’s experience but was uncomfortable because her vision was so impaired, and her corneas had become scratchy and dry. “One of my corneas had even blistered,” she adds. Her friend, Dr. Cindy Penzler, who is a respected ophthalmologist in Topeka, recommended she reach out to Dr. Timothy Cavanaugh with Cavanaugh Eye Center in Overland Park, KS for a consultation.

    “As soon as I met with Dr. Cavanaugh and went through the extensive eye exam I knew I was in good hands. I was impressed by how educated he is, his passion for it, and his fantastic staff. He just made me feel that confident,” says Carol. “Dr. Cavanaugh’s process is so unique because, not only is he experienced and efficient with DSAEK corneal transplantation, but he was the only surgeon I could find to do simultaneous cataract and corneal procedures. That made it 2 surgeries instead of 4, since I had cataracts on both eyes and needed both corneas replaced. It’s amazing how complicated it is but how well he does it.”

    One thing Carol found interesting during her initial exam was viewing the image of a healthy cornea compared to her cornea. Where you can see a cornea full of cells in the healthy cornea, the image of her cornea was just black. Dr. Cavanaugh came in and explained to Carol that was because you could literally see just a few cells left on her cornea.

    After her surgery, Dr. Cavanaugh told Carol her donor was a “super donor” explaining that at birth the cornea has 3,000 cells and at death it’s usually around 2,000. Her donor’s cornea had 2,900 cells – and Carol’s diseased cornea had virtual none.

    “You can imagine because of that it was a miracle for me. Within 2 to 3 days of the surgery I was seeing better than I ever had and I was still healing. It was life-changing! I was like a kid who just woke up from a black and white dream. Brighter, clearer and truer. And you have to remember I had the cataract surgery as well. When I went back to the next appointment one week later, they said I healed faster than most and I thank my super donor for that.”

    After her first surgery in June, Carol had her second cornea transplant in August. “I may still need a prescription at some point but right now I can read and drive without glasses and hadn’t been able to in 30 years – that’s a win for me.”

    For Carol, the process has been easy, and her surgeon did everything they could to make her comfortable during the procedure. “After meeting Dr. Cavanaugh, my attitude was I couldn’t wait to get this done. It was all outpatient and I had faith in Dr. Cavanaugh. It was maybe 2 hours at most. Everyone was friendly and upbeat. Nothing about it provided anxiety, pain or nervousness for me. I tend to be someone who can relax myself well though. The only thing that was a little difficult was keeping my head flat/back for 48 hours after to hold cornea transplant in place.”

    Life After Restored Vision

    Today, Carol is retired after working a majority of her life for an internet publishing company where she sold online and print advertisements for technology companies. Her first grandchild was born in early October. “I got to hold him and look at his face through clear eyes and see it so clearly and feel it so deeply, much more so than I would have before the surgery,” she says.

    Reading for Carol is also number one and has been so enhanced by her cornea transplants. “The best thing for me is for the first time in probably 30 years I don’t have to have glasses to read. I read all the time. And I volunteer for the audio reader programmer and it provides a 24/7/365 radio service for the blind and reading impaired. This lets me continue that so much easier. I read and record live shows and newspaper stories for an hour every day. Every single thing in my life is enhanced by good eyesight,” Carol adds.

    Connecting through Correspondence

    Following her transplants, Carol received a letter in the mail about Saving Sight’s Correspondence Program. “I was so happy to get the letter from Saving Sight about correspondence because I was thinking to myself, how do I thank the person who did this for me – what it has meant to me to be able to see so much better? This allowed me to say thank you to the donor family. I wouldn’t have had access to that information if I wouldn’t have received that letter. I realized it went beyond Dr. Cavanaugh. It began with the donor and it was so nice to be able to close that loop for me and let them know how much I appreciated their loved one being open to donation, to tell them this is what happened. It saved my sight.”

    “And I’m just very deeply appreciative of the work that Saving Sight does as well. I can never thank Dr. Cavanaugh or the donor enough for this second lease I have on life. This was a 100 percent uplifting experience for me during the worst pandemic of our lifetime.”

    Learning About Organ, Eye and Tissue Donation

    “I’m listed as an organ donor and had never thought about eye donation before this. It wasn’t until my surgeries that I thought about this and I just found it so amazing. I have a whole lot of respect for doctors, and researchers and those in the industry who are advancing this field,” says Carol.

    “It’s so needed because there are so many common eye diseases that could use corneal tissue to help the patient. It’s a huge contribution people can make through donation – if you contribute nothing more than cornea tissue you have made a significant difference in the lives of others.”

    You can join the national registry or learn more about organ eye and tissue donation at registerme.org.

    Eye Donation Month

    A Community of Compassion

    Celebrating the community present in giving the gift of sight to others during Eye Donation Month in November.

    Eye Donation Month | November 2021

    Join Saving Sight in celebrating the gift of sight and raising awareness about corneal donation and transplantation during Eye Donation Month in November. This annual observance, created by the Eye Bank Association of America, serves as an opportunity for eye banks, partners, and communities to commemorate the lives of individuals who have given vision to others through eye donation. The 2021 Eye Donation Month theme, “A Community of Compassion,” highlights the many individuals who work together to make restored vision through transplantation possible. 

    Honoring the Gift of Eye Donation

    In 2019, 68,759 individuals in the U.S. became eye donors, providing hope and sight to others in need of restored vision. At Saving Sight alone, eye donors help to give the of sight to 8 individuals each day. Scot, pictured to the left, is one of the many heroes who have given sight to others living in the darkness of corneal blindness.

    You Can Help This November!

    One of the many ways that you can support Saving Sight’s mission to change lives by saving sight is to help us raise awareness for the need for eye donation and help get others to join the organ and tissue donor registry! Whether it’s making a goal to get a group of friends to register online, or sharing a story on social media about the life-changing gift of eye donation, Saving Sight has got you covered with resources. 

    Follow Saving Sight on Facebook at @WeSaveSight for stories to share all month long. And, when you’re on Facebook be sure to check out the Eye Bank Association of America’s profile picture frame commemorating Eye Donation Month. To access the profile picture frame just log into your personal Facebook account, click your profile picture and select “update profile picture” and then “add frame.” If you search for Eye Donation Month, you’ll find a special frame created just for November! Stay tuned to our social media feeds all month long for other extras like stickers and camera effects and how to use them!

    Finally, please make sure that you are directing individuals to registerme.org as a call to action for them to sign up on the eye, organ and tissue donor registry! Their selfless decision may someday give others both life-changing and life-saving gifts.

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    The Healing Legacy of Eye Donation

    Hear Byron’s story and legacy as an eye donor, as told by Patrice in this moving remembrance courtesy of the Eye Bank Association of America. 

    Support the Mission

    You can help us our quest to educate others about the life-changing gift of eye donation by purchasing our Eye Donation Month merchandise. Each image features the words of  donor families and transplant recipients about how eye donation has provided hope and healing in their lives.

    Local Coroner Connects Families to Gift of Sight in Moments of Darkness

    Local Coroner Connects Families to Gift of Sight in Moments of Darkness

    Coroners and medical examiners work in difficult and often emotionally taxing situations. From doing investigative work at death scenes, conducting autopsies, and notifying the next-of-kin about a death, the job is often demanding and not fully understood by the communities these individuals serve.

    Taney County Coroner, Tony Mullen

    Taney County Coroner, Tony Mullen, believes that donation is one way he can bring hope to others during a time of grief.

    In southwest Missouri, one county coroner has found a way to serve his community in a way that brings hope of restored sight and life to others in the darkest times of loss. Taney County Coroner, Tony Mullen, works with local eye tissue bank, Saving Sight, to offer the opportunity of eye donation. For many families, honoring their loved one’s wish to give the gift of sight through donation brings a sense of peace and hope during the hardest time of their lives.

    “When you can physically see the results of donation, it’s huge,” said Mullen. “As a family member, I would feel honored if my loved one could be a donor.”

    As the county coroner, Mullen is in the unique position to work with agencies like Saving Sight when a death occurs to offer donation as an option in many cases. Mullen is also committed to educating others in his local community about donation and providing resources to help others understand the process. He believes it’s crucial for an individual to make their wishes about donation known to their family.

    “For many people, the only exposure they have to donation is at the DMV when they sign up,” said Mullen. “In the position that I’m in, I have the opportunity to educate others.”

    Each day, Saving Sight provides the gift of sight to nine individuals through the gift of cornea donation and transplantation. Additionally, 110,000 individuals in the U.S. are waiting for a life-saving organ transplant. You can make a difference in the lives of others by joining the eye, organ, and tissue donor registry at registerme.org and sharing your decision with your family.

    Leadership Through the Years – Board of Directors

    Leadership Through the Years – Board of Directors

    The Missouri Lions have given their volunteer, financial, and board support to our programs since 1960. Because of their support, Saving Sight is able to change more lives by saving sight each and every day. The Saving Sight Board of Directors is comprised of several key Lion members. Their leadership and expertise has helped the eye bank grow and evolve throughout the last 60 years and continues to move us forward into the future.   

    Read why Pat Martchink, Board President, and Larry Boettcher, Board Vice-President, find serving on Saving Sight’s Board to be impactful.  

    How long have you served on the Saving Sight Board and in what roles? I am in my fifth year on the Board. One year as a member, one year as Secretary, and now in my third year as President.

    Why is it impactful for you to serve on the Saving Sight Board? I have worked professionally in nonprofits for more than 35 years and I believe it is a noble cause. My father was blind for a part of his life so I understand the importance of Saving Sight’s mission. I believe in the idea of “service” and being a part of Saving Sight helps me to fulfill that idea.

    How does the Board function to support Saving Sight’s mission to change lives by saving sight? The Board helps to provide the “big picture” for the agency and then supports management to move the agency in that direction.

    How have things evolved since you first became connected with Saving Sight? I believe the Board has grown stronger in its support of the Saving Sight leadership. The Board wants Saving Sight to be progressive due to the competition of other eye banks and the for-profit entities businesses that have similar interests.

    Is there anything else about your experience as a board member or about Saving Sight you’d like to mention? I am thoroughly impressed by the work ethics of the entire Saving Sight Staff. They work hard and are truly dedicated to the mission of the organization.

    Pat Martchink, Board President

    Lions District 26 M-2

    How long have you served on the Saving Sight Board and in what roles? This is the beginning of my third year of my first term as a Board member elected to serve Saving Sight from my Lions District 26-M4. Prior to this term I was appointed by the Council of Governors for Missouri Multiple District 26 to serve as a Board member in my Lions capacity as the Vice-Council Chair for one year, and as Council Chair for the second year. I have served as the Board Vice-President for the past two years and I was elected by the board for the current year starting July 1, 2020. This is the beginning of my fourth year on the Executive Committee which meets once a month. Last year, and again this year, I have been appointed to serve on the Finance Committee which meets quarterly or as needed ahead of the Board Meetings. 

    Why is it impactful for you to serve on the Saving Sight Board? I believe my prior leadership positions that I have held in the Lions Organization along with my formal education, management training and seminars through Lions International, and my 21 year career in management, I bring all of that knowledge and skill set to this Board. One of the things I am known for on the Board is knowing our By-Laws and making sure our decisions follow those set guidelines. I always have my copy of our Board Handbook ready for review at any time, whether it is during a committee meeting or during the Board meetings.

    How does the Board function to support Saving Sight’s mission to change lives by saving sight? First, the Board as a Governance Policy that has the guidelines for the Board and for the CEO for the overall operation of the organization. This allows the day to day operation of the organization to go on without constant Board involvement. Second, the Board is responsible for actively participating in long-range planning for the organization along with determining the programs and services provided. As a Board we have to be progressive and always looking to the future for the overall success of the organization. An example is Vital Tears, in 2016 the Board approved the initial investment into creating that joint venture. They did this because they recognized with the Leadership at Saving Sight that there is a growing need for a solution for patients with chronic dry eye that can’t get relief from what was currently available. That part of our business is thriving and growing at an increasing pace. We have to continue to look for the next possibility, do our due diligence with our collaboration with Saving Sight leadership to continue the growth and sustainability of our organization.

    How have things evolved since you first became connected with Saving Sight? We have tried to recruit Lions and community members that bring a different perspective to the organization, and a true willingness to serve. We have brought the Board and Saving Sight leadership closer together in our working relationship by taking the effort to fellowship with one another after our meetings and spend time getting to truly know each other. We have focused on Board training including a new On-Boarding program that I developed for our newest board members each year. We have found that by covering all of the information ahead of their first Board meeting we have been able to use our time together in the Board meeting to focus on what needs to be done, rather than answering questions over and over each year.

    Historically, how have the Missouri Lions supported Saving Sight? Individual Lions and Individual Lions Clubs have donated money over the years to support the mission. When Saving Sight handled recycled eye-glasses the Lions of Missouri collected the glasses in their locations and brought them to Saving Sight for distribution in third world countries. When Saving Sight controlled the KidSight program the Lions of Missouri volunteered their time and money to support that program. The proceeds from the Missouri Lions All-Star Football game each year was donated to Saving Sight. Over the years the Districts in Missouri and the Multiple District raised money for matching grants through Lions Clubs International Foundation to purchase equipment for the labs. 

    Is there anything else about your experience as a board member or about Saving Sight you’d like to mention? I can honestly say that I enjoy serving on this board. This isn’t a mundane meeting that you just dread going to, because what we do does make a difference and has a profound impact on our communities. Not only for our employees, but for all of those patients that have restored eye sight or relief from their dry eye. I believe in what we do so much I personally support the organization through monthly giving.

    Larry Boettcher, Board Vice-President

    Lions District 26 M-4

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