Hiking over rough terrain and in cold temperatures is worth it to see the beauty of a glacier. On a recent Alaskan cruise from Anchorage to Vancouver, British Columbia, Katie and her husband hiked at Davidson Glacier in Alaska. “We had to hike over rough terrain to get to the glacier. There was a time I was not able to see well enough to hike with confidence. Now that I can see clearly, I feel able to take it on,” said Katie. “Every day I am grateful for my eyesight and the things I can accomplish.”
Just 3 years ago, Katie’s eyesight had deteriorated due to the eye condition keratoconus, which causes the normally round cornea to bulge and become cone-shaped. The misshaped cornea causes nearsightedness and blurred vision. Katie knew someday she would have to have a corneal transplant due to the condition. The question wasn’t if, but rather when. An avid reader, she was no longer able to see the words on the pages of her favorite books and relied on audio books to enjoy her favorite titles. Katie and her husband enjoyed traveling, but unable to read signs in the airport and along roadways, Katie’s worsening vision limited their ability to travel to the places they wanted to go.
For as long as Katie could remember her husband and friends could see things she couldn’t. As she got older and her keratoconus worsened, she wore contacts in both eyes but still couldn’t see. Katie retired early from the state of Illinois where she had found ways to enlarge the print on her computer to see the text and numbers with accuracy in her accounting work. Retirement provided her time to recuperate, making it the perfect opportunity for her to have her transplant. “One of the things that made me decide to go ahead and have this done is that we never know what the future holds and I would rather do it now and enjoy the benefits longer in my life,” said Katie. “Falling becomes a concern as you age and not being able to see increases that risk. You want to be able to see as well as possible for safety.”
In October 2013, Saving Sight coordinated donation from a generous donor to give Katie the gift of sight through a corneal transplant. With regained sight, Katie couldn’t be more appreciative to the donor and their family. “There is always that sorrow of losing a loved one and I thank them for making this decision,” said Katie. “Organ donation is essential to enhance peoples’ lives, not just corneas but everything – you can save a life or improve a life immensely.” Katie joined the organ donor registry years ago in the state of Illinois and carries the designation on her driver’s license.
Katie advises others who need a corneal transplant to go ahead with the transplant and enjoy the benefits of restored sight. “Be patient with the healing process, but it’s worth it,” she said. “I appreciate what Saving Sight does and being able to see better now.”
Join Katie and countless others by registering your decision to an eye, organ and tissue donor at registerme.org and share your decision with your loved ones.
For over 30 years, Barbara has made a difference in the lives of her students, first as an elementary public school teacher and later at the university level where she trained elementary, early childhood and special education educators to teach children at the most important times of development. At the heart of all she does is a passion for learning and education. Barbara is also an avid Mah Jongg player, enjoys making jewelry and loves to read. Now retired, Barbara continues to change lives by teaching university courses online and through her volunteerism with the American Red Cross.
Fuchs’ dystrophy threatened Barbara’s ability to continue changing lives, but thanks to the generous gift of a donor, she’s still active serving communities through the Red Cross. With a team of other retired educators as part of the Pillowcase Project, Barbara visits schools in Missouri to talk with thousands of 3rd-5th graders each year about emergency preparedness and basic coping skills in disasters, such as house fires, earthquakes and tornados. Barbara is also a member of a Red Cross disaster action team (DAT) that responds to house fires to help families cope and secure basic necessities.
“It’s kind of miraculous! As my eyes were deteriorating it became harder to see and reading was becoming blurry, so it made a big difference in what I am able to do,” said Barbara. “It’s remarkable that someone cared enough to donate those two corneas to someone like me.”
“Thank you – those two words don’t say it enough,” said Barbara.
When Barbara was in her early 40s, her ophthalmologist identified that she had Fuchs’ dystrophy. Her doctors monitored the deterioration until it progressed to the point she needed a transplant. Barbara had an endothelia keratoplasty on her left eye in March 2015 and on her right eye in August 2015. An endothelial transplant replaces the deeper layers of the cornea and does not require stitches. Her transplants were both successful and Barbara is recovering well.
Barbara was familiar with the degenerating and hereditary eye disease as both her father and paternal aunt had it as well. “I’ve always had the universal donor designation on my license because I’ve felt an ethical connection to donation. I just feel that it’s important, partly because my dad had two cornea transplants as well,” said Barbara. Barbara is also a blood and platelet donor.
“I encourage people to really be mindful of that process and organ donation. I think people can really make a difference to the life of someone else,” said Barbara.
Through her experience Barbara hopes that people learn more about the transplant process. She said she wants people to know it’s available and that Saving Sight is an organization that makes corneal transplants possible by facilitating the donation process.
Barbara chose to write to her donor families through Saving Sight’s correspondence program. “I felt like I needed to make a connection with the family and let them know that I received the cornea, that it’s going well and to let them know how thankful I am,” said Barbara.
“I just think it’s enhanced the quality of my life,” said Barbara. “You don’t really realize how important sight is until it’s gone – it’s a miracle they can make it better.”
When Alla was in school, she loved to play softball. Growing up in a small Kansas town in the 1920s, there wasn’t a girls’ team for her to play on. Short on players, Alla found herself playing catcher for the boys’ team. “The grandkids get a kick that grandma played on the boys’ team,” said Alla. Today, she enjoys spending time with her family, which includes four children and a slew of grandchildren and great-grandchildren. Alla also enjoys her charcoal drawings, swimming and taking lots of walks with Skippy, her Miniature Schnauzer. “He’s so cute and looks out for me,” said Alla.
When Alla went in to the eye doctor to get new glasses, she was told glasses alone wouldn’t make her vision better. Her doctor recommended surgery to remove scar tissue from her right eye. Nearly 40 years ago, a tree limb came in the window of a moving car, hitting Alla in the face and eye. “It hurt but I didn’t think too much about it at the time. We’re assuming that’s what caused the scar tissue and, as I got older, it started to get worse,” she said.
Alla had the surgery, but removing the scar tissue wasn’t enough to save her vision. In May 2016 she received the gift of sight from a generous eye donor by way of a penetrating keratoplasty corneal transplant. “My other surgery didn’t heal and there was a place in my eye that was evidently very thin. With it not healing, if it had gotten a hole in it I would’ve been blind, so it was just better to take care of it before it happened,” Alla said.
Only a few months out from her cornea transplant, Alla is in the healing process and is waiting to see the full results of the transplant. She is looking forward to being able to drive again when that time comes and being able to drive herself to swim again. “I can tell that the eye is gradually getting better,” said Alla. “I can see out of it okay but it’s still fuzzy.”
Before her transplant, Alla didn’t know much about the eye donation and transplantation process. “I was just absolutely amazed,” said Alla. “It’s just fantastic and everyone has been so helpful and so kind about everything. I knew people donated their eyes and I didn’t know how it worked.” Saving Sight worked with Alla’s surgeon to provide the corneal tissue for her transplant. “I just think it’s wonderful that people donate and I hope I can donate when I leave this world,” said Alla, a registered organ donor who proudly carries the designation on her driver’s license.
For those who are nervous to have a corneal transplant to save their sight Alla said, “I’d tell them not to be scared to have it done. I wouldn’t be able to see without it.”
You can join Alla, her eye donor and countless others who have made the selfless decision to save the sight of others by registering to be an eye, organ and tissue donor. Join the registry today at registerme.org and share your decision to be a donor with your loved ones.
As a manager, husband, father and grandfather, Steve was missing out on seeing many things in life. As his vision worsened, he thought he might need a stronger prescription. When Steve went to the eye doctor in 2012, they determined he had an eye condition called Fuchs’ corneal dystrophy.
“When my doctor told me I had Fuchs’ I didn’t know much about it and went back home to read up on it,” said Steve. Fuchs’ corneal dystrophy is a hereditary eye disease that causes vision to worsen as an inner layer of the cornea deteriorates. If left untreated, one can lose sight in that eye.
Over a 5 year period, Steve’s eyesight declined, causing him to lose the ability to read normal print. Driving at night also became a challenge for him. “I had lost a lot of that visual acuity,” said Steve.
As an office manager, Steve’s work requires a lot of reading and time on the computer. The decision was made for Steve to have a corneal transplant in 2015. “I thought it important to go ahead with surgery and thought it was important to do it to keep my level of performance at my job. It made a big difference,” said Steve.
Because of the generous decision and gift of corneal tissue from a donor and their family, Steve can now continue to work the next several years until retirement. Steve chose to write to his donor family through Saving Sight’s correspondence program to thank them. “I know that there are a lot of generous people out there and that’s one side of that – that someone made that decision – I wanted to let their family know how much I appreciated it,” said Steve.
Prior to his transplant, Steve did not have a connection to donation or know much about the transplantation process, though he has been a blood and platelet donor in the past. Steve said during the process there was a lot to learn about the eyes and the impact of what it means to go through the surgery and the healing process.
“From my first diagnosis, to the surgery, to the healing process – that whole process takes a while – but it’s an interesting adventure to see yourself healing,” said Steve.
His transplant and recovery were a success. And Steve said that the generous gift of sight has improved his quality of life immensely. “It gives me more enjoyment – brighter colors and clarity – there were things I was missing that I didn’t even know I was missing.”
To join the millions of Americans who have signed up for the donor registry, register online at Donate Life America or at your local Department of Motor Vehicles office. And be sure to share your decision with your family and friends.
Gentry came into the world completely blind. Born with congenital glaucoma and a protruding left cornea, Gentry had her first eye surgery when she was just two days old and received her first cornea transplant at one month to reconstruct her left eye and correct corneal cloudiness. While glaucoma is an eye disease commonly associated with the elderly, the reality is glaucoma affects people of all ages. Today at the age of four, she’s overcome more than 20 separate surgeries and five cornea transplants, including a prosthesis.
Gentry’s snowman artwork is featured on Saving Sight’s 2015 holiday card.
In spite of every obstacle she’s faced, Gentry is a happy pre-kindergartner, enjoying friends and her first year of school. That Gentry dances, plays, and reads just like other kids her age, is an achievement of modern medicine and her parents’ enduring support. As Gentry’s mother Becky put it, “It’s amazing where we started at compared to what Gentry’s able to do now.”
Though she had never encountered donation or transplantation before her daughter’s birth, Becky knows how important the the gift of sight is to people of all ages. Recently, her own family was directly impacted through the tragic death of a cousin, and because of Gentry’s experience, eye, organ, and tissue donation were important to the family’s legacy.
Our programs are preventing vision loss and changing the lives of many like Gentry, but we can’t achieve that mission without your support. This holiday season, please consider making a special, meaningful gift. By supporting Saving Sight, you help rescue thousands from the heartbreak of vision loss.
For Jamie from Branson, Missouri, cornea transplantation has been a truly life-enhancing experience. Jamie works for Tantone Industries, a nonprofit sheltered workshop that provides meaningful work opportunities to people like Jamie who have developmental disabilities. Additionally, as a resident of Branson, he loves to watch the country and gospel music shows for which the city is so famous. Jamie suffers from keratoconus, though, which could have caused him to go blind in both eyes, losing his ability to work and enjoy the music shows. But thanks to cornea transplantation, he has regained his sight.
“He’s never been able to see very well,” said Dorothy, Jamie’s grandmother, with whom he’s lived for the past 10 years. “About six to seven years ago, Jamie started complaining about his eyesight.” Keratoconus significantly impairs vision for about 1 in 2,000 people, but its cause remains unknown. According to the National Keratoconus Foundation, the disease “is a non-inflammatory eye condition in which the normally round dome-shaped cornea progressively thins, causing a cone-like bulge to develop.” As his eye lost its round shape, Jamie couldn’t get a pair of contacts to fit well on his eye. “Jamie’s mother is a dispensing optician,” said Dorothy. “She tried several different lenses, but he was really not able to use any of them very long.” Eventually, Dorothy took Jamie to an ophthalmologist who recommended a specialty pair, but they were difficult to put in place as well as rather expensive. “It got to the point where he’d only put them in when we went to a show or somewhere he needed to see better,” said Dorothy.
Ultimately, Jamie was referred to Dr. Tauber in Springfield, who suggested cornea transplant surgery. The first surgery took place in May 2013 and went very well. Transplant surgery for keratoconus takes longer to heal than some other cornea surgeries, so the second transplant took place 18 months later after the first was healed. But this too was a success. “Dr. Tauber said Jamie was one of his best patients,” reported Dorothy. “He was really proud of the way Jamie took care of his eyes.”
Jamie’s second transplant is still in the healing process, but his vision is already greatly improved. “I can see everything clearer,” said Jamie. “Dr. Tauber is a really good doctor. I’m happy with the transplants. I’m happy I have good eyes to see. It’s really good not wearing the contacts.” This improvement has been most noticeable at one of Jamie’s favorite pastimes: the Branson music shows. “When we go to the shows, the people know him and speak to him,” said Dorothy. “Normally we ask for a seat in the third or fourth row, but after the first surgery, we sat in the twenty-third row and he could see.”
Once his eyes heal, Jamie hopes to return to work at Tantone Industries. Tantone offers a variety of employment options to more than 40 disabled adults, and Jamie’s favorite occupation is the laundry department. “They have a commercial laundry with two huge washers and two huge dryers,” said Dorothy. “In summertime he’s especially busy because he does laundry for a youth camp, some of the motels, the police department, one of the funeral homes, table cloths for a convention center—he does it all!”
Before he returns to work, Jamie and Dorothy want to thank the families of the heroic people who donated corneas so he could see again. “Jamie is very grateful to his donors,” said Dorothy. “He grasps pretty well where his ‘new eyes’ came from.” The transplant experience has been such a success for Jamie that he and Dorothy also have become big supporters of donation. “It hurts to think about, but if donation can help someone else like Jamie or a child or whoever, it’s a wonderful thing,” said Dorothy. Jamie and Dorothy intend to participate in Saving Sight’s correspondence program so they can write to the donors’ families. “We just appreciate so much that he had these donors, and Jamie would like to express his appreciation to their families,” said Dorothy. “He wouldn’t have his eyesight back if it weren’t for the donors.”
Join Jamie, Dorothy, and the millions of Americans who support eye, organ, and tissue donation by signing up for the donor registry at the Donate Life America website or at your local motor vehicles office.
Hiking over rough terrain and in cold temperatures is worth it to see the beauty of a glacier. On a recent Alaskan cruise from Anchorage to Vancouver, British Columbia, Katie and her husband hiked at Davidson Glacier in Alaska. “We had to hike over rough terrain to get to the glacier. There was a time I was not able to see well enough to hike with confidence. Now that I can see clearly, I feel able to take it on,” said Katie. “Every day I am grateful for my eyesight and the things I can accomplish.”
For as long as Katie could remember her husband and friends could see things she couldn’t. As she got older and her keratoconus worsened, she wore contacts in both eyes but still couldn’t see. Katie retired early from the state of Illinois where she had found ways to enlarge the print on her computer to see the text and numbers with accuracy in her accounting work. Retirement provided her time to recuperate, making it the perfect opportunity for her to have her transplant. “One of the things that made me decide to go ahead and have this done is that we never know what the future holds and I would rather do it now and enjoy the benefits longer in my life,” said Katie. “Falling becomes a concern as you age and not being able to see increases that risk. You want to be able to see as well as possible for safety.”
For over 30 years, Barbara has made a difference in the lives of her students, first as an elementary public school teacher and later at the university level where she trained elementary, early childhood and special education educators to teach children at the most important times of development. At the heart of all she does is a passion for learning and education. Barbara is also an avid Mah Jongg player, enjoys making jewelry and loves to read. Now retired, Barbara continues to change lives by teaching university courses online and through her volunteerism with the American Red Cross.
When Barbara was in her early 40s, her ophthalmologist identified that she had Fuchs’ dystrophy. Her doctors monitored the deterioration until it progressed to the point she needed a transplant. Barbara had an endothelia keratoplasty on her left eye in March 2015 and on her right eye in August 2015. An endothelial transplant replaces the deeper layers of the cornea and does not require stitches. Her transplants were both successful and Barbara is recovering well.
As a manager, husband, father and grandfather, Steve was missing out on seeing many things in life. As his vision worsened, he thought he might need a stronger prescription. When Steve went to the eye doctor in 2012, they determined he had an eye condition called Fuchs’ corneal dystrophy.
For Jamie from Branson, Missouri, cornea transplantation has been a truly life-enhancing experience. Jamie works for Tantone Industries, a nonprofit sheltered workshop that provides meaningful work opportunities to people like Jamie who have developmental disabilities. Additionally, as a resident of Branson, he loves to watch the country and gospel music shows for which the city is so famous. Jamie suffers from keratoconus, though, which could have caused him to go blind in both eyes, losing his ability to work and enjoy the music shows. But thanks to cornea transplantation, he has regained his sight.
Jamie’s second transplant is still in the healing process, but his vision is already greatly improved. “I can see everything clearer,” said Jamie. “Dr. Tauber is a really good doctor. I’m happy with the transplants. I’m happy I have good eyes to see. It’s really good not wearing the contacts.” This improvement has been most noticeable at one of Jamie’s favorite pastimes: the Branson music shows. “When we go to the shows, the people know him and speak to him,” said Dorothy. “Normally we ask for a seat in the third or fourth row, but after the first surgery, we sat in the twenty-third row and he could see.”