After searching for a treatment for his Fuchs’ dystrophy online, Larry and his wife discovered DSAEK.
Five years ago, Larry of Fair Grove, Mo. was diagnosed with Fuchs’ dystrophy, a deterioration of the inner layer of the cornea. While eyeglasses and eye drops helped, his eyesight continued to decline – to the point he could no longer read and had difficulties performing his job as a handyman.
“My sight interfered with my work,” Larry remarked. “I needed an extreme amount of light. I would have to aim a spotlight right on the project to be able to do anything.”
Larry’s optometrist suggested a full cornea transplant to replace his damaged cornea, but the surgery’s long recovery time concerned this active senior. After researching Fuchs’ dystrophy on the Internet, Larry’s wife discovered that normal transplant surgery involved a full year recovery period which would be quite a hardship. Then she happened upon a website for other individuals with Fuchs’ dystrophy to share their experiences. One woman had shared her transplant experience performed by a doctor in Springfield, Mo. who was trained in the latest cornea transplant procedure developed by a doctor in Indiana. Descemet’s stripping automated endothelial keratoplasty (DSAEK) is a 30-minute surgery where only the inner layer of a donated cornea is replaced, requiring fewer sutures, less pain and a shorter recovery time. Larry had found his solution.
In 2008, after undergoing cataracts surgery, Larry underwent his first DSAEK corneal transplant performed by Dr. Shachar Tauber in Springfield, followed by a second surgery one year later. Said Larry, “My overall sight has come back pretty well. I still need glasses to read, but it’s a great improvement. I’m pretty impressed with my surgeries and my recovery.”
Today, Larry, who recently celebrated his 70th birthday, is back to work as a handyman and spends his free time reading and fishing. “My transplant has made life a lot more enjoyable!”
After her corneal transplant surgery, Annie is back to reading and working part-time.
Eyesight is something most of us take for granted – until it is lost. Once vision begins to fade, it can affect all aspect of one’s life – from managing duties at work to simply seeing the face of a friend.
Annie of Jackson, Mo. knows the impact of vision loss first-hand. This married mother of two and grandmother of three began experiencing blurred and hazy vision. She had difficulty reading and was unable to recognize people standing in front of bright light. In May 2009, she was diagnosed with Fuch’s dystrophy, a genetic corneal disease that progressively steals one’s sight, in both of her eyes. Her only option for recovery was a corneal transplant using tissue from an eye donor.
On August 5, 2009, Annie underwent an endothelial keratoplasty on her left eye as an outpatient at St. Francis Medical Center in Cape Girardeau. Said Annie, “Surgery was painless, and the recovery was quick. The only hard part was having to lie flat on my back for 24 hours after surgery, but it was worth it. My eyesight has improved so much!”
Since her surgery, Annie’s blurry vision is gone, and she is back to reading. She can even make out the faces of her friends and family once again. Her improved sight is especially helpful since this retired medical secretary continues to work part-time helping others through Comfort Keepers – an in-home service for the elderly.
Like all transplant recipients through Heartland Lions Eye Banks, Annie was offered the opportunity to correspond with her donor’s family. “When I received the letter, I didn’t know if I wanted to do it. But the more I thought about it, I owed it to the donor’s family – to let them know how much they have helped me and how grateful I was. Since then, I’ve received two letters from the donor’s mother. The first one made me shed a few tears. Her son was a young man who owned his own welding shop. She told me anytime you see a spark in your eye, it’s from my son.”
Annie is very appreciative of her donor’s family as well as Dr. Parker and his entire staff. After seeing the results of surgery and the changes it can bring, she is an avid proponent of eye and tissue donation.
“I’ve always thought about donation, but after going through the surgery, it really has made a believer out of me. I would definitely encourage everyone to register as an eye donor.”
“Now my eyesight is almost normal with a contact on, and playing sports is fun like it used to be. I don’t get looked at weird when people are talking to me, and I don’t have pain any more. Because of my donor, I can finally live my life how I want, without anything bothering me.
The need for a corneal transplant can occur at any age, for a number of reasons. For Kelsie of Kansas it happened in the prime of her young life – just as she was entering her teen years.
Kelsie, an active volleyball and soccer player, began experiencing problems in her eye. After visiting five doctors, she was finally diagnosed with a parasitic amoeba, contracted from contaminated water, such as from a pond of a hot tub. To treat the condition, Kelsie had to take eye drops every hour of the day, but even that didn’t cure the problem.
Said Kelsie, “My condition kept getting worse. It turned into a white blister on my eye, and I could barely see through it. It made playing sports a nightmare.”
Kelsie underwent a sight-saving corneal transplant in to rescue her diminishing vision. Although her recovery is still ongoing, Kelsie was able to get up and about within three days of surgery. Today, as a high school student, Kelsie is back on the playing field – but this time she returns with clear vision. “Now my eyesight is almost normal with a contact on, and playing sports is fun like it used to be. I don’t get looked at weird when people are talking to me, and I don’t have pain anymore. Because of my donor, I can finally live my life how I want, without anything bothering me.”
Kelsie and her family are grateful to her donor family for their generosity in a time of despair. To thank them for their donation, Kelsie, like many Saving Sight cornea recipients, wrote a heartfelt letter to the family.
Kelsie’s mother, Jodie, was especially touched by her daughter’s letter, “Honestly, the worst day of the entire ordeal was the day the nurse was explaining where the donor cornea would come from. It led to some revealing answers for Kelsie – that her donor needed to be near her age. It was very difficult for her to hear that, really for all of us, and I think that’s the day she decided that she wanted to show her appreciation for the generosity of this family that didn’t know her, didn’t know us, but was truly giving her back her life as she knew it.”
Together, Jodie and Kelsie encourage Kansas residents to join the state’s donor registry. “Registering as a donor is the single most selfless thing a person can do,” remarked Jodie. “You can’t imagine the changes and opportunities you can make for someone else in need. I have always been a donor, but it takes on a whole new meaning when someone you love is a recipient.”
Elizabeth was able to return to playing the piano after a cornea transplant restored her sight.
As a gifted piano player, Elizabeth often entertained seniors at a senior housing facility in Neosho, Mo. But as her eyesight began to fail, she faced difficulties playing all the requests. “I would play by ear many of the songs the residents wanted me to play, but if I picked up a music book or hymnal, the notes were too blurry to see.”
According to her eye surgeon, Elizabeth had simply outlived her corneas. For this active 75-year-old, the diagnosis was upsetting. In addition to affecting her piano playing, Elizabeth’s vision loss forced her to give up driving and her artwork as well as inhibited her ability to type and read.
Elizabeth finally underwent a corneal transplant on her left eye in summer 2010, which required donated corneal tissue. Although the cornea detached the day after her initial surgery and required an additional operation soon after, Elizabeth’s recovery was incredibly smooth. More important, it restored her lost vision.
Today, according to Elizabeth, her eye sight is better than it was even when she was young. Her left eye is 20/30, and she can read most print without wearing reading glasses. “My cloudy vision had slowly shrunk my world as I aged, but now my vision is so clear that I can once again read music, draw, sew, write and drive!”
Elizabeth chose to write to her donor family though Saving Sight’s correspondence department to thank them for their generous gift. “I wrote because I was so grateful. I thought that was really great they donated their loved one’s cornea to help someone else. It was very caring of them to do that, and I appreciate it so much.”
Not only is Elizabeth pleased with her restored sight, but so are the seniors who once again are able to enjoy her musical talent.
Chris was able to return to fishing after his cornea transplant.
Tying a fly for fly fishing can be difficult for someone even with 20/20 vision. But for an individual suffering from a blinding eye condition, the challenge can be downright impossible, stealing away the joy of a sport he once loved.
For years, Chris of Kansas City had been suffering from eye problems that left his vision compromised. “Everything was a big haze,” he remarked. “I would see ghost images, like four or five visions of the same chair. There were a lot of halos, a lot of flares, rings around taillights. The haze filled up my whole vision, making it hard to do anything.”
In his early 20s, Chris was diagnosed with keratoconus, a disorder that causes the cornea to become distorted. Chris was fitted with hard contacts to correct his eyesight, but as he grew older, the contacts became more cumbersome while his vision continued to deteriorate. Keratoconus affected his job in I.T., limited his ability to drive, and worst of all, affected his passion for fly fishing.
The Escape from Blindness
Finally, in 2004, Chris underwent a cornea transplant on his left eye under the care of Dr. Joseph Tauber of Tauber Eye Center. Although the first three weeks of his recovery were highly uncomfortable, Chris now has 20/20 vision when he wears a soft contact.
Said Chris, “Everyone wonders – how do you do that? You actually got your eyeball cut open? I think one of the reasons people don’t get the cornea transplants they need is because it’s a scary thought, but it’s so worth it in the long run. There’s nothing I wouldn’t have done to get my vision back.”
The first cornea transplant went so well that Chris underwent his second in 2009. “Although my vision’s not back 100%, it’s amazing I have 20/40 vision even without my contact on. I’m not there yet, but I’m better than I was.”
While Chris has been blessed with better eyesight, the journey has been bittersweet. Because of his condition, Chris’ donors had to be younger than the recipient and the corneas less than 72 hours old. “It’s such a double-edged sword. What’s good for somebody like me meant something bad had to happen to someone else. The hardest thing is knowing what another family was going through.”
Today, thanks to the gift of his donor families, the talent of Dr. Tauber, and the support of Chris’ optometrist, Dr. Jill Smith of Precision Optics, Chris is back on the water and enjoying his favorite sport. Only now it’s the fishes’ turn to be concerned about Chris’ vision.
One generous donor family granted the gift of sight to two brothers.
As identical twins, Garry and Larry have shared a lot in common – careers in the insurance industry, a love for fishing, and unfortunately, Fuchs’ dystrophy, a genetic disease which slowly stole their eyesight over the years.
The only hope to restore their lost vision would be a cornea transplant in each of their eyes. In a unique twist of fate, the two brothers who shared so many things over the years were about to share something else – a date for their cornea transplants.
For years, poor eyesight had hindered both brothers’ lifestyles. Larry, for instance, was forced to retire early because he could no longer read clearly at work. In addition, the bad eyesight affected their favorite pastime. “My brother and I like to fish, but the Fuch’s made it very difficult,” said Larry. “Trying to tie a hook on to a line – now that was a lengthy process.”
In December 2010, a caring donor family made the heartfelt decision to donate their loved one’s eyes to save the vision of others. The corneas were offered by Saving Sight to Dr. Timothy Cavanaugh of Cavanaugh Eye Center in Overland Park, Kan. who immediately scheduled surgeries for the brothers on the same day.
Larry underwent the surgery on his right eye first, followed by Garry. It was only after the surgeries did the brothers learn their corneas were from the same donor.
While Larry and Garry are still in the recovery process, their sight has improved dramatically. Garry, who had a transplant on his left eye in October 2010, is seeing a significant difference in his eyesight already, and Larry will be undergoing a transplant on his left eye in 2011.
“We’re thrilled with how the transplants have turned out,” said Larry. “We have been dealing with this disease for some time, so the opportunity to get our transplants was wonderful.”
Because of their experience, Larry and Garry encourage others to consider joining their state’s eye and organ donor registry.
Remarked Larry, “When you’re asked at the DMV if you’d like to be a donor, you take it for granted. You think it’s not really a big deal, but it is a big deal to someone else. If you haven’t needed a heart or kidney or cornea, you might not appreciate it. But after getting our transplants, we have a whole new appreciation for what others have gone through.”
