Kristie Celebrates Her Two-Year Transplant Anniversary

Kristie Celebrates Her Two-Year Transplant Anniversary

This month, Kristie celebrates her two-year corneal transplant anniversary. “It sure is a blessing and awesome to be able to receive a corneal transplant,” she says. “I learned those who give the gift of sight can sure help others!”

After 5 years of having issues seeing clearly out of her left eye, Kristie was able to receive a corneal transplant on March 19, 2018. Kristie’s vision had deteriorated due to corneal disease.

“It just got worse and worse as time went by to where contacts or glasses would not correct it! I was in surgery for 5 hours,” says Kristie, who was 34 and a stay-at-home mom at the time of her transplant. “After surgery, I was told to wear an eye patch for 1 day, but I ended up needing to wear it for a few days as my eye was sensitive to light. My eye was sore for a few weeks and slightly watery and bloody looking. I could not bend down or lift anything more than 25 pounds for 6 weeks and I had to use 2 eye drops after surgery for a month – an antibiotic drop and a sterile drop.”

Dr. Shachar Tauber was Kristie’s corneal surgeon. “He is a great doctor,” she says. “I would suggest him to anyone who lives in that area. He was very informative to my husband during surgery and after and he even checked on me after surgery and told me to let him know anytime I needed anything. I will go back to him again if I have any more eye problems in the future.”

Kristie adds she also had checkups with her eye doctor, Dr. Hood, every 2 weeks for a month then every month for 11 months to have stitches removed. “I had 16 stitches and they took them out 2 or 3 stitches at a time. I recovered nicely with no complications! Each time I have doctor’s appointment my sight gets better and better!” She’ll continue to have follow-up appointments at least once a year. “There is also a little pin hole black dot on my left iris that will be there for the rest of my life, so it helps my eye drain,” she says.

“It’s awesome and I’m thankful,” says Kristie. “I can actually see better than my right eye now which is interesting because my right eye used to be my ‘helping me see eye’.

“Before my transplant, I could not see anything, and everything was foggy in that eye. I couldn’t even see words on the TV.  I can now see in a hard contact. I have to wear a contact because I have astigmatism in both eyes. Before I could not wear a contact and see through it.” Kristie adds that she was born hard of hearing and the corneal transplant has helped her so much to see better and navigate her day-to-day life. She and her husband are even going to the gym and exercising together now.

Connecting Through Correspondence

Prior to Kristie’s transplant, she didn’t have a connection to organ, eye and tissue donation. Through the process she says she’s learned a lot. “It sure makes a difference to someone’s life. Without a transplant, some can’t see or live better lives. Some could even die.” Kristie chose to write a thank you letter to her donor family as well. “I just wanted to say thank you for their loved one’s precious gift.”

Because of her experience Kristie has signed up to be a donor on her driver’s license to help others. You can join the donor registry at registerme.org or at your local DMV.

One Couple Shares Their Unique Connection to Eye Donation

One Couple Shares Their Unique Connection to Eye Donation

Julie and Chris have a unique connection to corneal transplantation. Chris as a corneal tissue recipient and Julie as a tissue recovery technician for the Saving Sight eye bank.

“In late July 2016, I had a corneal abrasion on my right eye that sealed to form an ulcer covering my entire cornea,” says Chris. “My ophthalmologist put me on a regiment of fortified Vancomycin and Tobramycin to be taken every hour for two weeks. After two weeks of unrelenting agony and exhaustion, the ulcer had not decreased in size, and it was determined that a transplant had to occur.”

On August 5, Dr. Fraunfelder performed a cornea transplant in Chris’s right eye. “Though there was immediate relief from any pain, it took about two weeks for my eye to be able to be reopened. Since then, I’ve had to have a fitted solid contact lens, and have to take a steroid eye drop every day, but my vision has returned to normal. I’m extremely thankful for the team at University Hospital who helped me through this process and extremely thankful for Dr. Fraunfelder for performing the surgery.”

Chris says his surgery experience was a typical outpatient procedure. “Having the stitches removed a year later was more stressful, and even that was easy,” he says.

“It’s nice not having to wake up every hour on the hour in agony to squirt drugs in my eye. I was essentially bed-ridden during this time, unable to go to work, and underneath quite a bit of stress due to feeling completely shut out,” says Chris.

Julie and Chris on their wedding day.

Chris and his wife Julie are both advocates for organ, eye and tissue donation. “Without this surgery, I’m not sure how my quality of life would be,” says Chris. “As a freshman, I worked with an on-campus organ donation group called Donate Life, raising money and awareness for organ donation. Though I’ve always been an organ donor, this put into perspective exactly how important it is that people are in favor of donating.”

“While working as a recovery technician, I’ve discovered a large part of the public are anti-donation or just not registered donors due to common misconceptions, while many people wait for the opportunity to receive a donation that will drastically change their lives,” adds Julie. “I have always been very pro-donation, but had no personal association before Chris’s transplant.”

Julie has been a recovery technician with Saving Sight since this summer. She applied because she enjoyed the uniqueness of the job and wanted to use her medical experience to make a positive impact in her society/community.

“Each case is so unique; it keeps me growing as an individual and professional continually,” she says. “Being able to make such a difference in people’s lives is fulfilling, but the community that is Saving Sight was so unexpected and has meant so much. I love getting to spend time with my coworkers.”

Chris and Julie are thankful to the many individuals who have chosen to give the gift of sight. “It is very respectful of the donor and their loved ones and can not only save a life but comfort the donor’s loved ones.”

Chris and Julie with their #GivingTuesday #UnSelfie sign.

Support Saving Sight through Online Shopping

Support Saving Sight through Online Shopping

Thanks to AmazonSmile, you can support Saving Sight’s mission to change lives by saving sight when you shop online this holiday season and all year long. Simply shop at smile.amazon.com and pick Saving Sight as the charitable organization you want your purchases to support.

AmazonSmile features the same products, prices and Amazon Prime member benefits as Amazon.com with one awesome difference: Amazon donates 0.5% of all eligible AmazonSmile purchases to the nonprofit of your choice through the Amazon Smile Foundation. With AmazonSmile you can get the products you need and support Saving Sight’s charitable programs at no additional cost to you.

Follow these 4 simple steps to get involved with Saving Sight’s mission and support our important work through your online shopping.

  1. Visit smile.amazon.com.
  2. Login with your existing Amazon customer account or create a new account.
  3. Search “Saving Sight” in the “pick your own charitable organization” field and select “Saving Sight”.
  4. Shop and watch contributions to Saving Sight from your purchases grow.

If you have already completed these steps to set up your AmazonSmile account and designate Saving Sight as your charity of choice, thanks for your support! You will not need to set up your account again. Simply log-in and shop Amazon at smile.amazon.com to direct Amazon Smile Foundation contributions to Saving Sight.

Visit AmazonSmile here to learn more about the AmazonSmile Program.

Top Takeaways from AAO 2019

Top Takeaways from AAO 2019

The American Academy of Ophthalmology (AAO) annual meeting was held in San Francisco this October. This meeting is the world’s largest association of eye physicians and surgeons, bringing together leaders from around the world.

Our Saving Sight Team attends each year to learn about new trends in eye banking and ophthalmology, and to let our partners know innovations we are exploring. Attending also allows us to be a resource to our partners in sharing information to those who couldn’t attend or might have missed part of the meeting. This experience allows us to learn together side-by-side and be a stronger support to our partner surgeons in their work.

In case you missed AAO, or if you want a refresh, here are our top takeaways from the conference and presentations:

  1. Congratulations to Dr. Shahzad Mian on being awarded the R. Townley Paton Award at AAO 2019! This award is the Eye Bank Association of America’s highest honor for corneal physicians and is presented annually to an ophthalmologist in recognition of his/her outstanding contribution to eye banking and EBAA. Dr. Mian presented his R. Townley Paton Lecture entitled, Defining Competency for Cornea Surgeons: Fellowship and Beyond. During the lecture, Dr. Mian highlighted the goals of cornea fellowship in training physicians to provide the best care to patients. As the field of corneal transplantation continues to evolve, so too must training models and continuing education. His passion for education is clear, and our Saving Sight team was privileged to host Dr. Mian in St. Louis at our last DMEK wet lab in 2018. Saving Sight thanks Dr. Mian for his contributions to our DMEK wet lab and to the eye banking industry as a whole.
  2. During AAO, there was continued talk about the use of antifungals in Optisol. The EBAA reported a primary graft failure even with the use of antifungals. Some eye banks are increasing the concentration in hopes of improving efficacy. Many physicians are concerned about the possible toxic exposure to the tissue. This remains a controversial topic and few eye banks are adopting the use of antifungals.
  3. During the Cornea and Eye Banking Forum, an interesting lecture on the Comparison between Preloaded and Non-Preloaded Descemet Membrane Endothelial Keratoplasty was presented. This was pertinent for our partners who are considering DMEK and preloaded DMEK. The conclusion outlined that preloaded DMEK “showed good efficacy with similar visual outcomes, reduced graft detachment and a significantly lower rebubbling rate, compared with non-preloaded DMEK.” In addition, the study showed preloaded DMEK surgery time was significantly shorter than non-preloaded DMEK, improving efficiencies in the operating room. Another presentation of interest during the Cornea and Eye Banking Forum was DSAEK Failure in Eyes with Pre-Existing Glaucoma. The study looked at risk factors for DSAEK failure in glaucomatous eyes. The conclusion suggests glaucoma is strongly associated with a greater risk of Descemet’s stripping automated endothelial keratoplasty (DSAEK) failure.
  4. Several interesting articles were presented during Cornea Subspecialty Day, as well. Chief among them was EK Alphabet Soup: Which Flavor to Choose. This article by Dr. Marjan Farid provided a great summary on endothelial keratoplasty procedure choices, including DSAEK, DMEK, PDEK, and DWEK/DSO. The conclusion showed that EK is the standard-of-care for endothelial disease. In addition, DMEK provides better visual recovery; DSAEK is of value in complex eyes; and DWEK shows promise in central Fuchs-related cases. Cornea Subspecialty Day also had an interesting talk by Dr. Audrey Talley Rostov on an Update on Medical and Surgical Management of Dry Eye Disease. Dry eye disease affects more than 16 million people. One topic touched upon under pharmacologic management of dry eye is the use of serum tears. As co-founder and processor of Vital Tears autologous serum eye drops, this talk was very informative for Saving Sight to listen to. It allows us to see how Vital Tears and other techniques can be an asset to our physician partners.
Casey’s Story – Twenty-One-Year-Old College Student Regains Sight

Casey’s Story – Twenty-One-Year-Old College Student Regains Sight

“Since I had my cornea transplant my experience has been filled with joy because, for the first time, I do not feel like there’s anything that can hold me back. I feel like I can literally do anything without worrying about my sight,” says Casey. Casey is currently a dual major student and is studying Criminal Justice and Psychology with credentials in International Conflict and Child/Adolescence Development. When Casey was fifteen years old he developed a cataract on his left eye. Without cataract surgery, doctors said he would go blind in that eye. “However doctors did not know whether the surgery would restore my sight,” said Casey. “I had the surgery and waited a few months to see if my sight would be restored.

The surgery was successful in removing the cataract and it didn’t leave me blind, but it made my vision worse. However I never told anyone because I didn’t want to feel like a burden.” A few years later, Casey told his family and eye doctors that his vision had worsened in his left eye. His doctors told him that a cornea transplant was needed to restore his vision. Casey, now twenty-one years old, says his experience with his cornea surgery was a little frightening. “My doctors had given me so much hope, however I was fearful the surgery would not be successful – I was scared to believe.”

Casey’s cornea transplant was a success and his vision is continuing to improve during his healing process. “One of my favorite things to do is play video games and before my transplant I had to literally sit right in front of the television in order to see the game more clearly, but now I do not have to be so close,” says Casey. He can now see things further away as well. He is able to see road signs more clearly and looks forward to his doctors clearing him to drive. Prior to his transplant, he also had to have large font and use a magnifying glass on his phone. Now he enjoys putting his phone in standard mode to view his text messages. “I have learned a lot during this long process. I learned that there are hundreds of people like me out there who need a second chance at living. I know as a recipient I have the power to spread my message to people.

Organizations like Saving Sight are helping to restore sight to those like me who need it.” He adds that when it comes to donating, it’s about saving a life; it’s about restoring someone’s way of living and giving them hope for a better future. Casey chose to write a letter thanking his donor family as well. “After my cornea transplant I was approached about writing a letter to my donor family and I just loved the idea. Because of their family’s sacrifice, I am now able to see clearly and I just wanted to tell them thank you for what they have done for me.” I’m just grateful to my doctors who were amazing and who gave me hope and inspired me and to the donor family who during their tragedy and loss chose to donate. And I’m also very thankful to my family who are awesome people, drove me when I couldn’t drive, and took off work to come to my appointments.”

Casey has designated his decision to join the donor registry at his local DMV. “I love to help people and so on my license I chose to be a donor because I believe if someone is out there who needs it then why not donate?” You can join Casey by registering to be an organ, eye and tissue donor at your local DMV or at registerme.org.