M
Leave a Legacy
of Giving
You can support our mission of changing lives by saving sight in multiple ways!
Saving Sight, Donate Life Team Illinois, Life Goes On and Mid-America Transplant at the Cardinals/Cubs baseball game on September 13.
Saving Sight partners with local community events, health fairs and hospitals to increase donor designation through local donor designation drives. While 95 percent of Americans are in favor of being a donor, only 52 percent are registered. Donor designation drives help bridge the gap and allow Saving Sight to educate individuals about eye, organ and tissue donation and provide the community with resources to make the best decision for themselves and their family in regards to donation. In September, Saving Sight held several of these events throughout our service area.
Saving Sight teamed up with the Kansas Lions Sight Foundation to have a booth at the Kansas State Fair September 9-18. Saving Sight’s Hutchinson, Kan. office staff Heather Britain, Amber Simmons and Samantha Christenson took turns during the 10 days of the fair, along with local Lions Club volunteers, to man the booth that was part of the Lions Mobile Screening Unit. “What we as staff enjoyed the most was getting to talk to recipients and their families, donor families and even a transplant surgeon about all the positive things about donation they have encountered,” said Heather Britain, partner relations coordinator.
At the Washington County Memorial Hospital 22nd Annual Washington Health Fair on September 10 Richard Hamilton, partner relations coordinator for Saving Sight, raised awareness about Saving Sight and the community vision programs we offer and educated attendees on the importance of eye, organ and tissue donation.
Amber Simmons of Saving Sight shares about donor designation at the Kansas State Fair.
Saving Sight also joined Donate Life Team Illinois, Mid-America Transplant and Life Goes On at a donor designation drive at the Cardinals and Cubs game on September 13 to educate and increase donor designation with baseball fans. In addition to the organizations being represented, a heart transplant recipient, a donor mother and a kidney recipient also volunteered to speak with those who approached the booth, sparking conversation and questions among attendees.
Hosting donor designation drives at these different events helps educate those in different population groups throughout our service area and allows us to work with groups who have similar missions for promoting the positive impact of organ donation.
Nationally, nearly 120,000 men, women and children are awaiting organ transplants and each organ donor has the potential to save up to 8 lives and enhance the lives of up to 50 people. You can join the millions of Americans who have registered to be donors by signing up at registerme.org. Visit donatelife.net for resources to help spread the Donate Life message or to learn how you can host an event to register donors in your community.
Fuchs’ dystrophy threatened Barbara’s ability to continue changing lives, but thanks to the generous gift of a donor, she’s still active serving communities through the Red Cross. With a team of other retired educators as part of the Pillowcase Project, Barbara visits schools in Missouri to talk with thousands of 3rd-5th graders each year about emergency preparedness and basic coping skills in disasters, such as house fires, earthquakes and tornados. Barbara is also a member of a Red Cross disaster action team (DAT) that responds to house fires to help families cope and secure basic necessities.
“It’s kind of miraculous! As my eyes were deteriorating it became harder to see and reading was becoming blurry, so it made a big difference in what I am able to do,” said Barbara. “It’s remarkable that someone cared enough to donate those two corneas to someone like me.”
“Thank you – those two words don’t say it enough,” said Barbara.
When Barbara was in her early 40s, her ophthalmologist identified that she had Fuchs’ dystrophy. Her doctors monitored the deterioration until it progressed to the point she needed a transplant. Barbara had an endothelia keratoplasty on her left eye in March 2015 and on her right eye in August 2015. An endothelial transplant replaces the deeper layers of the cornea and does not require stitches. Her transplants were both successful and Barbara is recovering well.
Barbara was familiar with the degenerating and hereditary eye disease as both her father and paternal aunt had it as well. “I’ve always had the universal donor designation on my license because I’ve felt an ethical connection to donation. I just feel that it’s important, partly because my dad had two cornea transplants as well,” said Barbara. Barbara is also a blood and platelet donor.
“I encourage people to really be mindful of that process and organ donation. I think people can really make a difference to the life of someone else,” said Barbara.
Through her experience Barbara hopes that people learn more about the transplant process. She said she wants people to know it’s available and that Saving Sight is an organization that makes corneal transplants possible by facilitating the donation process.
Barbara chose to write to her donor families through Saving Sight’s correspondence program. “I felt like I needed to make a connection with the family and let them know that I received the cornea, that it’s going well and to let them know how thankful I am,” said Barbara.
“I just think it’s enhanced the quality of my life,” said Barbara. “You don’t really realize how important sight is until it’s gone – it’s a miracle they can make it better.”
Alla and Skippy, her Miniature Schnauzer
When Alla was in school, she loved to play softball. Growing up in a small Kansas town in the 1920s, there wasn’t a girls’ team for her to play on. Short on players, Alla found herself playing catcher for the boys’ team. “The grandkids get a kick that grandma played on the boys’ team,” said Alla. Today, she enjoys spending time with her family, which includes four children and a slew of grandchildren and great-grandchildren. Alla also enjoys her charcoal drawings, swimming and taking lots of walks with Skippy, her Miniature Schnauzer. “He’s so cute and looks out for me,” said Alla.
When Alla went in to the eye doctor to get new glasses, she was told glasses alone wouldn’t make her vision better. Her doctor recommended surgery to remove scar tissue from her right eye. Nearly 40 years ago, a tree limb came in the window of a moving car, hitting Alla in the face and eye. “It hurt but I didn’t think too much about it at the time. We’re assuming that’s what caused the scar tissue and, as I got older, it started to get worse,” she said.
Alla had the surgery, but removing the scar tissue wasn’t enough to save her vision. In May 2016 she received the gift of sight from a generous eye donor by way of a penetrating keratoplasty corneal transplant. “My other surgery didn’t heal and there was a place in my eye that was evidently very thin. With it not healing, if it had gotten a hole in it I would’ve been blind, so it was just better to take care of it before it happened,” Alla said.
Only a few months out from her cornea transplant, Alla is in the healing process and is waiting to see the full results of the transplant. She is looking forward to being able to drive again when that time comes and being able to drive herself to swim again. “I can tell that the eye is gradually getting better,” said Alla. “I can see out of it okay but it’s still fuzzy.”
Before her transplant, Alla didn’t know much about the eye donation and transplantation process. “I was just absolutely amazed,” said Alla. “It’s just fantastic and everyone has been so helpful and so kind about everything. I knew people donated their eyes and I didn’t know how it worked.” Saving Sight worked with Alla’s surgeon to provide the corneal tissue for her transplant. “I just think it’s wonderful that people donate and I hope I can donate when I leave this world,” said Alla, a registered organ donor who proudly carries the designation on her driver’s license.
For those who are nervous to have a corneal transplant to save their sight Alla said, “I’d tell them not to be scared to have it done. I wouldn’t be able to see without it.”
You can join Alla, her eye donor and countless others who have made the selfless decision to save the sight of others by registering to be an eye, organ and tissue donor. Join the registry today at registerme.org and share your decision to be a donor with your loved ones.
Saving Sight is pleased to welcome four new people to its Board of Directors for the 2016-2017 fiscal year (July 1 – June 30). Thank you to CC Lion Joe Foster, District 26 M2, Beaufort Lions, VCC Lion Larry Boettcher, District 26 M4, Marceline Lions, Lion Pat Martchink, District 26 M2, House Springs Lions, and Lion Mike Oldelehr, District 26 M7, Jefferson City Host Lions for joining the Saving Sight board. Board members are key to the organization’s success. They actively participate in long-range planning and secure financial resources to support sight-saving programs. As highly visible members of their communities, the board members also enhance Saving Sight’s public standing by sharing the mission, accomplishments, and goals with Lions clubs, the general public, and other partner organizations.
“Our board members provide crucial oversight to help us achieve our goals,” said Tony Bavuso, chief executive officer. “We are able to change more lives by saving sight through their engagement and support.”
Saving Sight also expresses its gratitude to four people who retired from the board of directors on June 30, 2016. “We were honored to have PCC Dan Bernskoetter, PCC Al Blumenberg, CC Gary Curtis and VCC John Deters serve on our board,” Bavuso said. “They provided valuable feedback these past few years. On behalf of the staff and the recipients of our programs, I thank them for their service and wish them all the best.”
Rick was an active family man who continued to give in death as an eye donor.
Rick enjoyed having a good time in all he did. He was also a good steward and gave his time freely to help others and loved spending time with his wife, children and grandchild. Rick lived an active lifestyle, was a gifted craftsman and an excellent athlete. He had given up basketball the year prior when he had heart surgery, but continued to play volleyball and golf until he passed away at age 61. Rick was a sports car enthusiast, an active deacon and church youth leader, and had served in the Missouri Army National Guard.
“He’s just a great guy gone way too soon,” said his wife Theresa.
Rick passed away of a heart attack during a volleyball game in 2014. “It was very hard on his teammates – they performed CPR – but I was very thankful he was not by himself,” said Theresa. Because living an active lifestyle was so important to Rick, he and his wife had talked about organ donation and end-of-life-care.
“While in shock and coming to grips that terrible night, there wasn’t a doubt that we were going to do the organ donation,” said Theresa. She and Rick were both blood donors and registered organ donors; they believed in giving what they could to help others. “It’s good to have those conversations, even though they’re not fun,” said Theresa. “You’re just so totally lost and in shock, but having some direction
Rick and Theresa share the belief in giving what they can to help others.
about what you’ve talked about gives you confidence in making these tough decisions.”
Theresa said some people might not understand the immediacy of the questions about donation. Hospital staff, the funeral home director and Saving Sight all explained the process and made the difficult situation as positive as it could be. It was impactful for her that Rick was able to help people until the very end with his gift of life.
Being able to donate his corneas meant a lot to Theresa because Rick had prided himself on his excellent eyesight compared to her needing strong corrective lenses. Because of Saving Sight’s correspondence program, Theresa knows Rick’s cornea was able to help a nurse regain her vision.
“It just helps me as I transition to life without him – it helps me know that I honored a wish of his,” said Theresa. Both of their children are nurses as well. Knowing their father’s recipient was a nurse resonated with them and reinforced to Theresa that it was a ‘meant-to-be kind of thing.’
Theresa said individuals thinking about joining the donor registry need to personally evaluate if that’s the right decision for them within their belief system. If it is, they need to be able to communicate that to their next-of-kin so it’s not a surprise when handling end-of-life-care. “That’s what I can really recommend – communicate. Death is hard enough, but when there’s surprises, that can be a challenge,” said Theresa.
Join the millions of Americans who have signed up for the donor registry by signing up online at registerme.org or at your local Department of Motor Vehicles office. And be sure to share your decision to be an eye, organ and tissue donor with your family and friends.