Donor Family Finds Comfort through Volunteerism to Honor the Legacy of their Son

Image of John and blue and green balloons at Floragraph Ceremony in November.For Larry and Vivian, volunteering in support of the Donate Life message has brought great healing after their son John gave the gift of life as an eye and tissue donor.

John was a loving and protective big brother to his sister, Eleanor. Just 17 months apart, the siblings shared many friends and interests. They both loved sports and music. “John played the baritone saxophone on an award-winning jazz band in junior high and high school, earning a personal award at a jazz festival in high school,” said Vivian. He was also very involved in scouting, from Tiger Cubs to Cub Scouts and Boy Scouts. John also loved politics and was involved in many political organizations, especially when he went to college. “Just 6 weeks before John passed away, he started school to become a massage therapist, which had long been a dream of his,” said Vivian.

John died of an aortic dissecting aneurysm on October 11, 2004, just under four weeks before his 23rd birthday. “When the ER doctor came in to ‘that’ room to tell us the news that they were unable to revive John, our world collapsed around us,” said Vivian. “At some point, we thought of donation and told the nurse that we wanted John to be a donor. There was no thought, at this point, about what could or could not be donated. We simply wanted him to be a donor.”

Gift of Hope in Illinois called Larry and Vivian at the hospital to explain the donation process. “After this day, the next correspondence we received was from the Lion’s Eye Bank, now Saving Sight. We were told John’s corneas went to two people in Missouri who could now see this world through our son’s beautiful eyes,” said Vivian. “Thus began the feelings of comfort and healing that donation gives to the donor family. Over the next few years, we received the news that John’s other bones and tissues were given to 35 other recipients.”

Because of donation, Vivian and Larry know that John’s legacy lives on in 37 other people. “A man and a woman in Missouri gained sight because of his corneas. The fact that two people see this world through John’s eyes is remarkable,” said Vivian. “A Staff Sergeant in the Army has a rebuilt knee from our son. Beyond those, there are 34 people from New York to California and Florida to Wyoming, who carry a part of our son’s precious gift.”

Larry and Vivian have been very involved as Donate Life volunteers on both the national and local level.Volunteering with Donate Life

As a donor family, Larry and Vivian feel there is no way to overstate how meaningful John’s donation has been to their ability to cope with, and survive, in a world without him. “Add to this, the benefits of being advocates for donation through Saving Sight, IL Secretary of State Jesse White’s office, Gift of Hope and Eversight, and you have our recipe for survival,” said Larry. One of the questions Vivian asked the day he died was ‘How will people know John?’ “This is accomplished by being donor advocates for the above organizations and others. We have been blessed to share John throughout the state of Illinois and to places as far away as Savannah, GA, Denver, CO, Salt Lake City, UT and Pasadena, CA. The measures of comfort and healing we have been blessed with are incredible. It is our saving grace,” said Larry.

Larry and Vivian have been very involved as Donate Life volunteers on the national and local level. Here are a few of their volunteer experiences:

  • Presentations and booths (too numerous) for groups from small health care seminars, nursing students, hospital staff, and professional organizations associated with donation (funeral home directors, coroners, etc).
  • Savannah, GA – Presentation for the American Pyrotechnic Association’s National Conference, 2010
  • Denver, CO – Presentation to Allosource home office staff, 2007 and 2015
  • Denver, CO – Presentation to all 3 shifts at Statline, 2015
  • Salt Lake City, UT – Presentation to Allosource staff, 2007
  • Pasadena, CA – Donate Life Rose Parade Float, Vivian rode the float in 2013, and John is on a Floragraph in 2018
  • Pasadena, CA – We are both members of the DL Rose Parade Float committee, 2013 to present

“We have received such healing through the organizations that have nurtured us and allowed us to tell our story, through their employees who are always there for us, through the recipients and donor families that we have come to know and love around the country, and most importantly, for this important cause which also allows us to include both our daughter and granddaughter in our journey as we honor John.”

Vivian and Eleanor decorating John's floragraph at their celebration in November.Donate Life Rose Parade Float Floragraph

In October, Larry and Vivian were able to travel to California to decorate a floragraph that will be carried on the 2018 Donate Life Rose Parade Float with their daughter Eleanor and granddaughter Alina. “We left the majority of the floragraph decorating to Eleanor, who did a fantastic job,” said Vivian. They left part of the floragraph unfinished to bring home to Illinois to have friends and family help complete it at a special event.

This November, Larry and Vivian held a beautiful celebration at the United Community Bank in Sherman to finish decorating John’s floragraph. The intent of the event was not only to finish John’s floragraph, but to also promote donation said Larry. “We invited family to help with this, as well as longtime friends of ours, John’s and Eleanor’s. We, of course, had help from Saving Sight and the IL Secretary of State’s Office, both at the event and leading up to it.”

“On the day of the event, we were overwhelmed by the response,” said Larry. “We saw former teachers and classmates of John’s, including his former jazz band director. Family and friends visited from all over the state of Illinois and Iowa.”

The decision to participate in the Donate Life Float was an easy one for their family. “We are blessed that our business was in a position to sponsor John this year. We have been involved with the Donate Life Float for 6 years – first as honorees and the last 5 as volunteers and committee members,” said Larry.

“It is unbelievable that John’s floragraph will be placed on the Donate Life Float and will have the chance to been seen by hundreds of thousands on the parade, and millions on television,” said Vivian.

 

Look for the Donate Life Float during the 129th Rose Parade on January 1, 2018.

 


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