“Since I had my cornea transplant my experience has been filled with joy because, for the first time, I do not feel like there’s anything that can hold me back. I feel like I can literally do anything without worrying about my sight,” says Casey. Casey is currently a dual major student and is studying Criminal Justice and Psychology with credentials in International Conflict and Child/Adolescence Development. When Casey was fifteen years old he developed a cataract on his left eye. Without cataract surgery, doctors said he would go blind in that eye. “However doctors did not know whether the surgery would restore my sight,” said Casey. “I had the surgery and waited a few months to see if my sight would be restored.
The surgery was successful in removing the cataract and it didn’t leave me blind, but it made my vision worse. However I never told anyone because I didn’t want to feel like a burden.” A few years later, Casey told his family and eye doctors that his vision had worsened in his left eye. His doctors told him that a cornea transplant was needed to restore his vision. Casey, now twenty-one years old, says his experience with his cornea surgery was a little frightening. “My doctors had given me so much hope, however I was fearful the surgery would not be successful – I was scared to believe.”
Casey’s cornea transplant was a success and his vision is continuing to improve during his healing process. “One of my favorite things to do is play video games and before my transplant I had to literally sit right in front of the television in order to see the game more clearly, but now I do not have to be so close,” says Casey. He can now see things further away as well. He is able to see road signs more clearly and looks forward to his doctors clearing him to drive. Prior to his transplant, he also had to have large font and use a magnifying glass on his phone. Now he enjoys putting his phone in standard mode to view his text messages. “I have learned a lot during this long process. I learned that there are hundreds of people like me out there who need a second chance at living. I know as a recipient I have the power to spread my message to people.
Organizations like Saving Sight are helping to restore sight to those like me who need it.” He adds that when it comes to donating, it’s about saving a life; it’s about restoring someone’s way of living and giving them hope for a better future. Casey chose to write a letter thanking his donor family as well. “After my cornea transplant I was approached about writing a letter to my donor family and I just loved the idea. Because of their family’s sacrifice, I am now able to see clearly and I just wanted to tell them thank you for what they have done for me.” I’m just grateful to my doctors who were amazing and who gave me hope and inspired me and to the donor family who during their tragedy and loss chose to donate. And I’m also very thankful to my family who are awesome people, drove me when I couldn’t drive, and took off work to come to my appointments.”
Casey has designated his decision to join the donor registry at his local DMV. “I love to help people and so on my license I chose to be a donor because I believe if someone is out there who needs it then why not donate?” You can join Casey by registering to be an organ, eye and tissue donor at your local DMV or at registerme.org.
One of Barb’s Favorite Songs Includes the Words: “If I can help somebody as I pass along, If I can cheer somebody with a word or song, If I can show somebody he is travelling wrong, Then my living will not be in vain.”
“My mom was ALWAYS happy! She was everyone’s best friend and she never met a stranger,” says Tamika of her mom, Barb. “She had the most beautiful smile and the most distinctive laugh ever!”
Tamika adds that Barb was an expert shopper and bargain-hunter who loved finding deals on clothes and shoes, but especially loved purchasing home decor. “She took pride in her decorating skills, and loved searching magazines for the latest in interior design. She loved cooking and enjoyed entertaining friends at her home, and was also an avid reader. She would read a book a day! Above all else, she loved spending time with her family – especially her grandchildren. She was definitely their biggest fan.”
When Barb passed away, she was able to give the gift of sight to others as an eye donor. “My mom made the choice to become an organ donor through the DMV and encouraged me to do the same,” says Tamika. “That’s the type of person she was…always a giver. She impacted so many people – her funeral services were attended by over 400 people!”
Tamika chose to write to her mother’s recipient through Saving Sight’s Correspondence Program because she felt it was important to make that connection with her recipient. “I wanted them to know more about their donor, and I wanted to learn more about them as well. It’s mind-blowing to know that there’s a part of her that lives on in someone else!”
“I’d like to believe that someone’s life has been enhanced because of my mom’s donation. I hope that they know that by receiving any part of her, they are connected to a brilliant, strong, loving, faith-filled person.”
“#LiveLikeBarb was something that I came up with right after my mom passed away,” says Tamika. “So many people spoke about how they aspired to be like her or how they admired the type of person she was. That hashtag is a small reminder that we should all strive to live the way she did. Even while living with Congestive Heart Fail-ure, she never allowed her health to slow her down. She always had joy, was always quick to forgive, she never complained, and she lived a life of gratitude. Who wouldn’t want to Live Like Barb? The buttons are just a tangible reminder of that – I usually keep several on hand at all times because I’m always running into a classmate of hers, a for-mer co-worker…even her favorite cashier at JCPenney asked for one!”
“In honor of my mom’s birthday, I got Live Like Barb tattooed on my shoulder…I’m sure she was somewhere rolling her eyes about that!”
“I made a promise that my mom would be famous – that her name and legacy would live forever. I don’t ever want her story to be solely about me and my journey without her…my goal is to have her life story impact others in a way that helps them to live their lives in a more meaningful way.”
Joining the Donor Registry
For those considering joining the organ, eye and tissue donor registry, Tamika says: “The most important thing that we can do while we’re here on earth is to be a blessing to someone. That’s how you leave a legacy, by ensuring that someone else has a second chance at life through the generosity of organ donation. It’s a chance to be a hero.” You can join the donor registry at your local DMV or at www.registerme.org.
November is Eye Donation Month! Eye Bank Association of America (EBAA) uses the month as an opportunity to educate the public about the importance of registering to be a donor, about cornea donation and transplantation, and to acknowledge the work of their partner eye banks. As a member eye bank, Saving Sight will be taking part in celebrating Eye Donation Month and the theme of The Power of You. The campaign demonstrates the “power” that individuals have in building hope, restoring sight and changing lives, including healthcare professionals and partners, researchers, eye bank staff, corneal surgeons, and recipients and donor families.
We will be sharing several cornea recipient and donor family stories in November. Be sure to follow Saving Sight on Facebook and on our website during November for #EyeDonationMonth. Thank you for helping us change lives by saving sight!